A community for people affected by Cystic Fibrosis

CFCommunity is an online meeting place created by people with CF, for people with CF.

We want to make it easy for those who live or work with CF everyday to connect.

Learn more about us or...

Sign up for CFCommunity

What role does Cystic Fibrosis play in your life?

Breaking news: Life with CF is different!

Just kidding, you already knew that. There's always a bunch of stuff going on that only others with CF truly understand. With CFCommunity we've created a place where we can hang out and talk about all the things that make life with CF different/awesome/lame/special.

Hanging out online is not as good as throwing real life rave parties all across the world, but sadly that plan was scrapped early in our brainstorming process (segregation, pseudomonas blablabla). Instead we wasted blood, sweat and salty salty tears on creating an online meeting place where we would like to hang out and meet others with CF.

On CFCommunity you can create your profile, start a blog, talk to others with CF and share pictures of your cat nebulizing (that's a joke. don't actually do that!). It's kinda similar to Facebook but 100% less lame and with 100% more privacy! It's just for people affected by CF and we've made it easy to find and connect with people in similar situations as you.

We hope to see you on CFCommunity soon!

A virtual pseudomonas-free hug from,
Bowe, Sarah & the rest of CFCommunity Team

cc-license

A meeting place for everyone affected by Cystic Fibrosis

A baby sister. an older brother. a wife. a girlfriend. All the people in the pictures above deal with CF every day.

CFCommunity is not just for people who have CF. We've also made it for you; someone who loves someone with CF. A (grand)child, a sibling or your partner, we want to make it easy for you to connect with others in the same situation.

Every person who becomes a member of our community fills in their relationship with CF. We use this information (along with your location and age) to let you easily search for and connect with people on CFCommunity!

By using our Discussion Groups you can talk about specific subjects in-depth and in private. Finally if you need further support or want to stay up to date about all the medical news, our Causes page let's you easily find and connect with all the CF related initiatives out there!

We hope to see you on CFCommunity soon!

Bowe, Sarah & the rest of the CFCommunity Team

Join us and... Sign up for CFCommunity

Bringing all the Cystic Fibrosis related causes from across the world under one roof

By creating a page for your cause on CFCommunity you can share news, post updates, brochures and connect with the people in our community. If you currently manage a Facebook Page for your cause you get the idea (with the big difference that we actually care about your cause and you reaching your audience without having to pay! ;-)

With CFCommunity we are not trying to get in the way of any of the existing CF related causes. It's our goal to make it as easy as possible for our community members to find and follow the causes that are important to them. If you would like to directly engage with our community you can choose to open a discussion forum but this is completely optional.

You can learn more about starting a Cause Page on CFCommunity by clicking here!

  • Group logo of CF Mommies

    This is a group that talks about CF & Kids

  • Group logo of Nederland

    Lorem ipsum dolor sit amet, consectetur adipisicing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea […]

  • Group logo of Cystic Fibrosis Foundation

    The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible […]

A shared space for patients to talk amongst each other or with your staff

Due to segregation rules it's very hard for patients from the same hospital to ever meet. With CFCommunity we are building a platform where any hospital can very easily create a shared space for patients to talk amongst each other or with hospital staff. This is currently already done by some hospitals through Facebook but we strongly believe that Facebook is the wrong place for this due to lack of privacy and an commercial agenda.

When you create a discussion groups for your hospital a member of your staff has full control of who enters the group. Only after a person has been approved to enter the group the content will be viewable. Additionally your staff can upload documents/brochures to the group which can then directly be viewed by everyone inside the group.

I'm new to Cystic Fibrosis, why is CFCommunity needed?

People with Cystic Fibrosis are not allowed to have contact with one another. It increases the chance of lung infections and has the potential to reduce life expectancy. Now imagine that thousands of others also share this genetic disease but you won’t ever be able to meet with them in person. You won’t be able to get together to share stories, a shoulder, a helping hand, a hug, or build a community of support and encouragement.

Online, however, we can interact and engage as much as we want. Online we can create a community and a support network. Online we can make friends. Being around people who truly understand you is important. This realisation is what sparked our ambition to create something for us; the Cystic Fibrosis community. This is why we created CFCommunity.

CFCommunity is 100% dependent on donations! We have managed to start our dream project thanks to many donations from friends, family and people affected by Cystic Fibrosis all across the world. We are now an officially registered cause in the Netherlands and any donation for our cause would be amazing.

By supporting CFCommunity you can make a difference for those who live with CF.

Learn more about supporting CFCommunity